Usha Patel, 82, moved to Leicester many years ago and faced significant challenges, raising two children on her own. These experiences shaped her resilience, independence, and lifelong commitment to learning.
Usha initially decided to join the Dementia Champions programme to learn more about dementia and better look after herself. Attending a session opened her eyes to the wider challenges faced by people affected by dementia and inspired her to get more involved to support others as well.
Why Usha became a Dementia Community Champion
Usha believes in being prepared for the future and continuing to learn at every stage of life. “You never know what the future holds,” she says. She wanted to increase her own understanding of dementia so she could feel more confident and take care of herself, while also being in a position to help others.
She was particularly motivated by the lack of accessible information and open conversation about dementia within minority ethnic communities. Becoming a Dementia Community Champion gave her a way to challenge stigma and share clear, trustworthy information.
The difference Usha makes
As a Dementia Community Champion, Usha shares dementia information and resources with individuals and groups. She listens, and through these conversations, Usha has seen how greater awareness can reduce fear, increase understanding and encourage people to seek support earlier.
The benefits of being a Champion
Volunteering as a Dementia Community Champion has been rewarding for Usha. It has:
• Increased her confidence
• Helped her stay mentally active and engaged
• Given her a sense of purpose
• Enabled her to support people in a practical, meaningful way
At 82, Usha is proud to continue learning and contributing, and to play a role in improving dementia awareness.
Playing an important role as a Dementia Community Champion
As part of the Dementia Community Champions team, Usha speaks to local people about their experiences of dementia and signposting them to appropriate support.
This is important because people from South Asian backgrounds are at a higher risk of developing dementia. While the reasons for this are not fully understood, certain cultural and social factors, as well as higher risks of other health conditions like diabetes and stroke, may play a role. Additionally, people from minority ethnic communities are often underserved in terms of access to health information, research and support.
For more information about Reaching People’s Dementia Champions project with Alzheimer’s Research UK, visit our website.
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